Windowira guides
Privacy guides
Three guides about protecting health information in clinical research.
Choose a file
Which question is yours?
- AYou want the overall picture
Read how clinical trials protect your privacy.
- BYou want to know what is recorded
Read what data a study collects about you.
- CYou want to know who looks
Read who can see your study records.
All files
Every privacy guide
File AHow clinical trials protect your privacyThe layers of protection around research data: federal rules, HIPAA, ethics boards, coding, Certificates of Confidentiality and their limits.File BWhat data a study collects about youThe kinds of information a clinical trial records, from contact details and medical history to samples, apps and linked records.File CWho can see your study records?The people and groups allowed to view study records, from the site team and monitors to regulators, ethics boards and you.
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